Larry, Sly and Lymes Disease

The epic adventure that is lymes disease... over a year mis-diagnosed, 6 rounds of treatment over three years. Proceed to my ramblings about my last two treatments - intravenous antibiotics and the L-protocol. And hope with me, and for my sake, that I get better.

Friday, June 01, 2007

Some final thoughts

- Acceptance is difficult
- Believe me
- Believe in me
- It's never seems that difficult when going through it, it's just in looking back that I realize how awful it was... a form of self preservation, no doubt, but highlights the need for someone to advocate for me.
- Help me to be compliant
- Be your own advocate within the health care system. Don't believe the first opinion, or the second even. You have to fight for the best care possible.
- Don't let disease rule your life
- I would probably have been cured faster if I had just taken some time off from school for awhile, allow myself some time and space to rest.
- The above comment made, I also don't regret the choices that I made. You must be both psychologically happy and physically cared for to heal. Sometimes you just have to do what you want and take the consequences.
- Not knowing is the worst
- Hoping is dangerous but important
- Love is essential.
- It's wonderful to help, but the final battle must be fought by me.
- The best gift is emotional support and listening openly
- I am going to get 100% better.

1 Comments:

At 9:59 PM , Anonymous Anonymous said...

Your blog has been incredibly helpful in understanding what you have gone through and to some extent, continue to go through. It is encouraging to know that the good days are outnumbering the bad and that you personally have hope for the future and to be 100% well. I hope and pray that with you. Please let us all know when you need someone to come along side to help you through. Those of us who have helped you get so much more than we give. It helps us to not feel helpless. Here's to the future, and to the present...one day at a time!

 

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