A protest!

My friend Mark, my mom and I went to a lymes protest in NY on thursday. We got to hold signs and I got interviewed by local TV stations because I went with my IV drip in (pole and all)... very exciting. It was to protest the new guidelines published by the IDSA that would severely curtail the treatment new lymies get and would make any new treatments for me difficult to get.

There is an important petition going around - please sign it if you haven't already. It's at:
http://www.lymediseaseassociation.org/referral/Petitions/Petition.php?id=1


Lymes, unfortunatly, is an expensive and political disease. Remember to be your own advocate in the health care system, they'll spit you out fast if they can.