Larry, Sly and Lymes Disease

The epic adventure that is lymes disease... over a year mis-diagnosed, 6 rounds of treatment over three years. Proceed to my ramblings about my last two treatments - intravenous antibiotics and the L-protocol. And hope with me, and for my sake, that I get better.

Friday, June 01, 2007

Some final thoughts

- Acceptance is difficult
- Believe me
- Believe in me
- It's never seems that difficult when going through it, it's just in looking back that I realize how awful it was... a form of self preservation, no doubt, but highlights the need for someone to advocate for me.
- Help me to be compliant
- Be your own advocate within the health care system. Don't believe the first opinion, or the second even. You have to fight for the best care possible.
- Don't let disease rule your life
- I would probably have been cured faster if I had just taken some time off from school for awhile, allow myself some time and space to rest.
- The above comment made, I also don't regret the choices that I made. You must be both psychologically happy and physically cared for to heal. Sometimes you just have to do what you want and take the consequences.
- Not knowing is the worst
- Hoping is dangerous but important
- Love is essential.
- It's wonderful to help, but the final battle must be fought by me.
- The best gift is emotional support and listening openly
- I am going to get 100% better.

Lessons from the sick

I am not sure how much longer I am going to keep blogging... I am feeling repetitive. Most of my intense thoughts are already out there, I just keep cycling them around. As I get better, then relapse and start new protocols, it will be more of the same. More self-doubt, more anger, more forgiveness, more frustration, more hopes crushed, more meager attempts of acceptance. I'm not sure writing it out again is helpful to anyone, including myself.


Blogging has forced me to think about being sick, to express what it means concisely and quietly. Giving those I love a look into my convulsions of my mind. I am feeling pretty good right now, which makes life seem incredible and lymes a small blip on my life screen. Blogging seems less important as good days outnumber bad.

Before totally dismantling this blog, I am going to try to put together some final thoughts on a long fight that is continuing in my body and mind. Let me know if the blog continues to be helpful or if what I have up is already enough/too much of an insight into my life.